Welcome to Partners in Research! A community where you can share your health-related research interests as a patient, researcher or healthcare advocate.
Everyone in the stakeholder community--especially patients, caregivers, and their clinicians--are vital to developing research that empowers patients and their families.
Here's an article that makes a really strong case for what’s needed in rare disease research -- A network that's really efficient in conducting clinical trials in rare diseases. http://www.pcori.org/blog/how-patient-centered-outcomes-research-helps-families-rare-diseases [...]
This one-day symposium organized by Paul Taylor and Fen-Biao Gao will bring together basic and clinical scientists to discuss the role of perturbed RNA metabolism in neurological diseases, including amyotrophic lateral sclerosis (ALS), frontotemporal dementia (FTD), spinal muscular atrophy (SMA), and repeat expansion disorders. [...]
Summary from a very large CDC study on diabetes. Longer life-spans are definitely complicating the picture. "The ongoing diabetes and obesity epidemics have combined with ever-increasing human lifespans to increase lifetime risk of type 2 diabetes to about 40 percent for both men and women, said lead study author Edward Gregg, [...]
There is a history of diabetes in my family. As my parents age, I see the toll it takes on their health and happiness. I'd like to get involved in diabetes research or at least learn more about the advancements being made in prevention. I'm not sure where to start [...]
The National Breast Cancer Coalition's "Breast Cancer Deadline 2020" report will be coming out soon. The focus of the report is to bring experts and visionaries together to reframe the approach to science and research and to focus on preventing breast cancer. The focus of the organization is to save [...]
A new screening program for cancer using lifestyle, genetics and family history data Screening programs for breast, bowel and cervical cancers use age and gender to identify people most at risk. However several other risk factors, such as ethnicity, genetics, family history and lifestyle also contribute to cancer risk. [...]