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Welcome to Partners in Research! A community where you can share your health-related research interests as a patient, researcher or healthcare advocate.

Everyone in the stakeholder community--especially patients, caregivers, and their clinicians--are vital to developing research that empowers patients and their families.

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Mar 2, 2016 · @susie_a · Here's an article that makes a really strong case for what’s needed [...]

Here's an article that makes a really strong case for what’s needed in rare disease research -- A network that's really efficient in conducting clinical trials in rare diseases. http://www.pcori.org/blog/how-patient-centered-outcomes-research-helps-families-rare-diseases [...]

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Wed, Jun 14 5:40pm · @anonymous_user_10987 · Brain Research Symposium

This one-day symposium organized by Paul Taylor and Fen-Biao Gao will bring together basic and clinical scientists to discuss the role of perturbed RNA metabolism in neurological diseases, including amyotrophic lateral sclerosis (ALS), frontotemporal dementia (FTD), spinal muscular atrophy (SMA), and repeat expansion disorders. [...]

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Oct 13, 2016 · @drkirkwood · Summary from a very large CDC study on diabetes. Longer life-spans are [...]

Summary from a very large CDC study on diabetes. Longer life-spans are definitely complicating the picture. "The ongoing diabetes and obesity epidemics have combined with ever-increasing human lifespans to increase lifetime risk of type 2 diabetes to about 40 percent for both men and women, said lead study author Edward Gregg, [...]

Posted by @frank_r, Oct 13, 2016

I was surprised by this figure as well.

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Aug 13, 2014 · @paulagill · There is a history of diabetes in my family. As my parents [...]

There is a history of diabetes in my family. As my parents age, I see the toll it takes on their health and happiness. I'd like to get involved in diabetes research or at least learn more about the advancements being made in prevention. I'm not sure where to start [...]

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Aug 13, 2014 · @susie_a · The National Breast Cancer Coalition's "Breast Cancer Deadline 2020" report will be [...]

The National Breast Cancer Coalition's "Breast Cancer Deadline 2020" report will be coming out soon. The focus of the report is to bring experts and visionaries together to reframe the approach to science and research and to focus on preventing breast cancer. The focus of the organization is to save [...]

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Sep 24, 2014 · @frank_r · A new screening program for cancer using lifestyle, genetics and family history [...]

A new screening program for cancer using lifestyle, genetics and family history data Screening programs for breast, bowel and cervical cancers use age and gender to identify people most at risk. However several other risk factors, such as ethnicity, genetics, family history and lifestyle also contribute to cancer risk. [...]

Posted by @diane_p, Aug 15, 2014

This sounds like a very interesting study @frank_r. Thanks for sharing!

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RSS NIH
  • Perspectives on Evidence-based Funding June 23, 2017
    At the NIH Regional Seminar this past May, I had the pleasure of giving the keynote talk and presenting different perspectives on how NIH can further the impact of our research funding. .... My staff recorded this talk and has made it available to you on the NIH Grants YouTube channel. If you’re interested in […]
  • NIH’s Next Generation Researchers Initiative June 16, 2017
    At the Advisory Committee to the Director meeting last week, NIH Principal Deputy Director Dr. Larry Tabak presented a new NIH initiative to strengthen the biomedical workforce. This presentation followed extensive discussions with stakeholders both here through this blog, at stakeholder meetings, and at NIH advisory council meetings over the last month. We heard unequivocal […]
  • Getting to Know Federal Funders and their Research Interests June 6, 2017
    Working with NIH applicants and awardees as an extramural program division director, I often shared the NIH RePORTER resource as a tool for exploring the research topics NIH supports. Learning what projects we support, using a robust database of historical and newly-funded projects (updated weekly), provides researchers valuable insight as they consider developing their own […]
  • Following Up on Your Feedback on How to Strengthen the Biomedical Research Workforce June 5, 2017
    We appreciate the many thoughtful comments posted to the blog about working together to improve NIH funding support for early- and mid-career investigators to stabilize the biomedical workforce and research enterprise using a measure called the Grant Support Index (GSI). Some clear themes have emerged, including: .... Continue reading →
  • Implementing Limits on Grant Support to Strengthen the Biomedical Research Workforce May 2, 2017
    NIH realizes that, as stewards of the American investment in biomedical sciences, we must do all we can to protect the future of the biomedical research enterprise, taking additional measures regardless of our budget situation. In the opening pages of this blog, we noted that our increasingly hypercompetitive system is threatening the future of biomedical […]